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Useful resources for wish families
We're often asked for help and information on other support charities – and sometimes we need our wish families to obtain official documents to assist us in granting their wish.
Please see the list below for links to useful websites and other charities.
Little Hearts Matter
Little Hearts Matter are a national UK charity offering help to anyone affected by the diagnosis of single ventricle heart condition. From initial antenatal diagnosis, through treatments and into life at home, the charity works with children, young adults and families to reduce the isolation, fear and lack of understanding created when a child is diagnosed as having half a working heart.
Phone number: +441214558982
Address: 75 Harborne Road, 4th Floor, Edgbaston, Birmingham, B15 3BU
MPS Society
The MPS Society provides support to families affected by rare genetic conditions. They raise money and awareness of these conditions through fundraising, information, research and support.
Phone number: +443453899901
Address: MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP
Macmillan Cancer Support
To provide physical, emotional and financial support from diagnosis, through treatment and beyond for those suffering from cancer.
Phone number: +442078407840
Address: 89 Albert Embankment, London, SE1 7UQ
Make Sure
A specialist travel insurance company for pre-existing medical conditions and providing cover for travellers of all ages including those who are over 65.
Phone number: +442038736718
Address: Pennine House, 28 Leman Street, London, E1 8ER
Metabolic Support UK
Metabolic Support UK are the leading patient organisation for Inherited Metabolic Disorders supporting thousands of patients worldwide. They deliver many support services to patients and families to meet their varying needs, including Family and Community Services, Awareness and Advocacy and Information and Research.
Phone number: +448452412173
Address: 5 Hilliards Court, Sandpiper Way, Chester Business Park, Chester, CH4 9QP