Wish eligibility

These illnesses are eligible for a wish

• 3rd degree burns more than 30% body surface
  
• 3rd degree burns between 10% and 50% area when this concerns the face and / or hands
• Multisystem trauma with permanent disabilities
  

These illnesses are NOT eligible for a wish

• 3rd degree burns less than 30% body surface area

These illnesses are eligible for a wish

• Dilated cardiomyopathy with heart failure
  
• Congestive heart failure
• Primary pulmonary hypertension
• Chronic pulmonary hypertension if it can lead to a reduction in life expectancy
• Congenital heart defect with heart failure or ongoing cyanosis
• Arrhythmias that require an internal defibrillator
• Hypoplastic left heart
• Hypoplastic right heart
• Heart Transplant: Prior to surgery, complications with surgery, or rejections
  
• ICD (internal defibrillator)
• Moyamoya disease
• Tetralogy of Fallot, dependent on complications
• Eisenmenger syndrome
  

These illnesses are NOT eligible for a wish

• Chronic diseases that do not lead to a limitation of life expectancy are not eligible.

These illnesses are eligible for a wish

• Systemic scleroderma
• Junctional epidermolysis bullosa(major blistering disease): severe form that can lead to a reduction in life expectancy

These illnesses are NOT eligible for a wish

• Dystrophic epidermolysis bullosa
  
• Epidermolysis bullosa (large blister disease): mild form that does not lead to a limitation of life expectancy
• Chronic diseases that do not lead to a limitation of life expectancy are not eligible.

These illnesses are eligible for a wish

• Severe short bowel syndrome
  
• Liver, pancreas and bowel transplants: Prior to surgery, complications with surgery, or rejections
• Congenital biliary atresia
• End stage liver failure, post infectious toxic or vascular
• Crohn’s disease. Only eligible if the child has experienced emergency or long term hospitalisation

These illnesses are NOT eligible for a wish

• Chronic diseases that do not lead to a limitation of life expectancy are not eligible.

These illnesses are eligible for a wish

• Alexander disease
• ARC syndrome
• DiGeorge syndrome
• Barth syndrome
• Chromosomal disorders that can lead to a reduction in life expectancy
  

Congenital anomaly, chromosomal, or single gene condition with associated life-threatening complications such as:

• Trisomy 13 (Patau syndrome) and 18 (Edwards syndrome)
• Intractable seizures
• Structural upper airway abnormalities or chronic pulmonary symptoms
• Heart anomalies meeting cardiology guidance
• Chronic renal failure
• Associated major gastrointestinal dysfunctions
• Skeletal dysplasias or dysostoses with chronic or degenerative pulmonary complications

These illnesses are eligible for a wish

• Progressive diseases where there is a real threat of treatment by chemo or bone marrow transplantation
• Bone marrow transplants: Prior to surgery, complications with surgery, or rejections
  
• Thalassaemia major
• MDS (Myelodysplastic Syndrome)
• Sickle cell disease
• Chronic congenital hypoplastic anaemia
• Aplastic anaemia (Fanconi’s & idiopathic)
• Severe agranulocytosis

These illnesses are NOT eligible for a wish

• Chronic diseases that do not lead to a limitation of life expectancy are not eligible

These illnesses are eligible for a wish

• Immune deficiency if bone marrow transplantation is necessary
• Bone marrow transplants: Prior to surgery, complications with surgery, or rejections
  
• Auto-inflammatory conditions (eg S-JIA) if these cannot be controlled with regular medication
• Juvenile dermatomyositis provided that it can lead to a limitation of life expectancy
• Mixed connective tissue disease (MCTD) if it can lead to a limitation of life expectancy
• Systemic lupus erythematosus (SLE) if it can lead to a reduction in life expectancy
• Systemic scleroderma
• Vasculitis, if it is a form that can lead to a reduction in life expectancy
  
• Acquired immunodeficiency syndrome (AIDS)
• Congenital immune deficiencies requiring bone marrow transplant causing reduction in life expectancy
  

These illnesses are NOT eligible for a wish

• Auto-inflammatory disorders responding well to regular medication
• Transient forms of vasculitis, e.g. 'Henoch-Schönlein and Kawasaki
  
• Chronic diseases that do not lead to a limitation of life expectancy are not eligible.

These illnesses are eligible for a wish

• End stage renal failure
• Long-term dialysis
• Kidney transplants: Prior to surgery, complications with surgery, or rejections
  

These illnesses are NOT eligible for a wish

• Short term dialysis
• Chronic diseases that do not lead to a limitation of life expectancy are not eligible

These illnesses are eligible for a wish

• Progressive or degenerative neurological disorders
• Progressive or degenerative myopathy
• Congenital muscular dystrophy
• Duchenne muscular dystrophy
• Epilepsy, if there is an indication for epilepsy surgery and / or if there are frequent major seizures despite drug treatment.
• Leigh syndrome
• Lennox Gastaut syndrome
• Dravet syndrome
• Myoclonic encephalopathy
• Rett syndrome
• Ataxia telangiectasia
  
• Friedreichs ataxia
• Malignant brain tumours
  
• Aicardi syndrome
• Batten disease
• Cerebral palsy - if a child has an unsafe swallow, is gastrostomy fed or who has experienced chest infections that have lead to regular hospitalisations
  
• Spinal muscular atrophy type 1 & 2

These illnesses are NOT eligible for a wish

• Spina bifida (without complications that limit life expectancy)
• Chronic diseases that do not lead to a limitation of life expectancy are not eligible.
• Autism
• Global developmental delay
• Mental health conditions
• Spinal muscular atrophy type 3

These illnesses are eligible for a wish

• All oncology, if pending or registered within 5 years after the last treatment
• Bone marrow transplants: Prior to surgery, complications with surgery, or rejections
• Malignant bone tumours & soft tissue sarcomas
• Non - Hodgkins lymphoma
• Hodgkin’s lymphoma
• Metastatic solid tumours
• Acute lymphoblastic leukaemia (ALL)
• Acute myeloid leukaemia (AML)
• Chronic myeloid leukaemia (CML)
• Malignant bone tumours
• Soft tissue sarcomas
• Wilms tumour
• Brainstem tumours
• Malignant brain tumours

These illnesses are NOT eligible for a wish

• Oncological patients longer than 5 years after the last treatment

These illnesses are eligible for a wish

• Complicated, severe bronchiectasis
• Cystic fibrosis
• Lung transplants: Prior to surgery, complications with surgery, or rejections
  
• Any chronic lung disease which is likely to reduce life expectancy
  

These illnesses are NOT eligible for a wish

• Asthma

These illnesses are eligible for a wish

• Progressive metabolic disease if it can lead to a reduction in life expectancy
• Cystinosis
• Hunter syndrome
• Hurler syndrome
• Sanfilippo's syndrome
• Systemic sclerosis
• Neimann-pick disease
  
• Gaucher’s disease
• Any with severe progressive neurological involvement

These illnesses are NOT eligible for a wish

• Metabolic diseases that are not progressive and do not limit life expectancy
• Chronic diseases that do not lead to a limitation of life expectancy are not eligible
• Type 1 diabetes

These illnesses are eligible for a wish

• Transplant patients (except skin and corneal transplant)
• Bone marrow and stem cell transplants: Prior to surgery, complications with surgery, or rejections
  

These illnesses are NOT eligible for a wish

• Skin and corneal transplantation

These illnesses are eligible for a wish

• Children with a condition that can lead to a limitation of life expectancy, for example:
• 24 hour ventilation
• ICD

These illnesses are NOT eligible for a wish

• Allergy that may involve an anaphylactic reaction
• Chronic diseases that do not lead to a limitation of life expectancy are not eligible