Wish stories

Kian's wish...

“I wish to be a ninja”

10 years old, Liverpool

Severe epilepsy

100% funded

Kian, 10, from Liverpool, lives with absent seizure epilepsy that affects every aspect of his life. He was diagnosed when he just six years old and it means he has between 40-60 seizures a day. At its worst, he can have more than 100 and Kian is now on his eighth medicine due to his epilepsy being drug-resistant.

Kian's story

May 2019

Kiam with his parents during his wish to be a ninja.

Kian with his parents during his wish

The day that changed a life forever

Kian was a typical little boy who enjoyed playing football and performing martial arts, until one day when he was six. Whilst playing football with his dad, Kian went to get the ball and walked straight past it. His dad repeatedly shouted his name but he didn’t respond. Kian then walked back, ball in-hand but oblivious to his dad’s shouting. After this unusual episode, his concerned mum, Kellie, relayed the events to their GP who said it could be absence seizures. After further episodes, Kian went for testing and it was confirmed that he had epilepsy.

Missing out

Kellie, said: “He can’t do the little things. You can’t give him simple instructions.”

Kian does not recognise when he has had a seizure which means that his safety is constantly at risk and everyday tasks become almost impossible. Imagine not being able to:

  • Dress yourself
  • Play or go out on your own
  • Ride a bike
  • Complete school work
  • Participate in group activities
  • Live independently

A recent school psychology report on Kian showed that he was currently working at the level of a six-year-old - four years behind his peers. Kian’s seizures also result in friendships becoming frayed as other children think Kian is ignoring them when playing games, which leads them to get frustrated with him.

Kellie admitted: “It’s hard because I need to try and remember everything for him. If I’m not present, we won’t have the information we need for school.”

Kian’s future is still “worrying” as puberty can make seizures even worse and recently, he has started blinking uncontrollably, to the point that he can’t see what’s going on.

Kian's wish

February 2020

Kian sparring with another ninja while other watch on in the background.

Kian sparring with an assailant while others watch on

Fighting back

One thing that Kian was not going to miss out on was his wish to have a ninja experience. After his Wishgranter, Dan, said he had: “the most extraordinary afternoon working from home I’ve ever had,” handling top secret spy messages, Kian was ready to be a ninja and fight not only spies, but the barriers that hold him back each day.

As the party bus pulled up to the Parkour site, the wish party was “just made up. Kian and his family spent the day fighting spies, living out a dream and making lasting memories.

Mum, Kellie, recalled: “We could see the excitement and enjoyment not only on Kian’s face, but his siblings’ too. They said it was the best day they’ve ever had.”

Kian locking his sights on an unknown assailant.

Kian locking his sights on the enemy

Filling the gaps

She added: A wish gives a child that experience and memory of something they would never get without Make-A-Wish. It has a big impact on the children; Kian is mostly stuck in the house, so going out and doing something, even for a day, is big for him.”

Despite an uncertain future and Kian’s frequent absences from reality, Kellie is sure that no child will miss out when love is present:

"As long as you have each other and love and support, no matter what they face in life, they can achieve anything."

Kellie, Kian's mum

We'd like to say a big thank you to Matt Rock Photography for capturing Kian's wish and producing the amazing slideshow.
Instagram: @mattrockprophoto
Twitter: @MattRock_photo1
Facebook: www.facebook.com/MattRockPhotography

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