Art of Wishes 2020

Welcome to the Art of Wishes Fundraising Campaign 2020!

Today, more than ever, Make-A-Wish UK needs your help and support.

Our target is to fulfil at least 100 of the 2000 urgent wishes.

Current total £34,600

£0 £125k £250k

Anthony

7 years old

Brain tumour

"I wish to be the Hulk"

Anthony, seven, from Norwich, is a caring and happy little boy. He likes to learn new things and enjoys putting on shows to highlight his theatrical skills. Unfortunately, Anthony has ganglioglioma – a rare brain tumour causing increased pressure within the brain, resulting in seizures, headaches and fatigue. Aside from the physical symptoms, Anthony has missed a large part of his childhood, with friends and school taking a backseat. In 2017, Anthony had surgery to remove the tumour and has recovered well. He has lost some of his vision but Anthony won’t be stopped easily. He wants to be The Hulk – quite literally. Anthony didn’t think twice about his wish as it reflects his desire to be invincible, inside and out. Despite feeling anxious since lockdown, there’s no doubt Anthony will smash anything in the way of his wish... and beyond.

£0

0% funded

£2500

Wish granted Wish Granted

Phoebe-Lou

18 years old

Leukaemia

"I wish to have driving lessons"

Phoebe, 18 from Staffordshire, is a self-confessed “girly girl,” who loves hair and make-up and feels best when all dressed up. She has many dreams to travel and help communities around the globe, but these were abruptly halted with her leukaemia diagnosis a couple of years ago, leaving her feeling like a “vulnerable baby”. In shock, her first thought was: “Am I going to lose my hair?!” The answer was yes, along with her independence and start to adulthood. These were traded for regular chemotherapy treatment which Phoebe still undergoes. Admirably, throughout this chapter in her life Phoebe has remained positive and empathetically reminds herself there’s always someone going through worse, so she’s thankful to be here to enjoy life. Phoebe wanted her wish to be something she would always be thankful for and decided having driving lessons was the thing to reclaim her independence and put her back in the driving seat.

£1100

100% funded

£1100

Oliver

9 years old

Leukaemia

"I wish to go to Lapland"

Ollie, nine, from Derbyshire, is described by his family as a “proper cheeky chappy with a twinkle in his eye”. He loves singing, playing air drums, animals, jigsaws and basketball. Although it seems that Ollie is the one with the ability to bounce back! Ollie was born with Downs syndrome, and in 2018 he was diagnosed with leukaemia too, which was a huge shock to his family. Within 24 hours he had had his first operation to assess the severity of the cancer. Ollie responded well to intense chemotherapy, but had to go through the gruelling treatment a second time. Consequently, he’s been back to hospital with sepsis, pneumonia and many other infections, but has conquered them every time. His wish is to go to Lapland and meet Santa with the hope of ringing the end of treatment bell with The Man In Red – a gift that will extend beyond Christmas; a sound that will signal the start of Ollie’s future.

£300

9% funded

£3200

Sienna

10 years old

Hurler's syndrome

"I wish to be a fashion designer"

Sienna, 10 from Beaconsfield, is outgoing, creative and friendly - she loves making people laugh. Although her start to life was quite the opposite: at eight weeks old, she was put in a pelvic harness for suspected hip dysplasia. However, after being referred to a specialist, she was diagnosed with MPS 1 Hurler syndrome which is caused by a recessive gene that seriously impairs development. Sienna had a bone marrow transplant just before her second birthday, and needs a further eight operations to correct skeletal abnormalities. Yet, Sienna continues to defy the odds and refuses to let her condition stop her. Her wish to be a fashion designer has given direction for her passion and creativity. Being told she may never walk or talk isn’t the only thing Sienna refuses to accept. She uses the phrase: “No that’s not my style,” repeatedly to her mum.

£0

0% funded

£1800

Jack

6 years old

Cerebral palsy

"I wish to have a hot tub"

Jack is six and has experienced life-threatening seizures since he was just seven hours old, which have caused developmental delay. During lockdown he couldn't access physiotherapy or the kit he uses at school in Wiltshire, which affected his mobility. So his wish is to have a hot tub as this would really help him to both relax and exercise. Lockdown has affected his sister too. As a young carer, Evie used to access siblings' activities provided by their local children's hospice. Those have stopped because of the coronavirus. But she'll be able to share the joy of splashing around in Jack's hot tub and seeing him so happy - as will their mum Hayley.

£0

0% funded

£4250

Dakota

11 years old

Cerebral palsy, Epilepsy

"I wish to have cookery equipment"

Dakota, 11 from Birmingham, is a strong, resilient, opinionated character with a “zest for life”. She loves to cook, bake, and rock climb with her para-climbing club. But climbing walls aren’t the only obstacles in Dakota’s life after being born at just 24 weeks, weighing only 680g! Her prematurity was “a massive challenge,” as she was diagnosed with cerebral palsy and a chronic lung condition. Since then, she’s developed visual impairment and epilepsy. Lockdown became “a time of damage control,” with a cancelled wish, a spoilt birthday and 12 weeks of illness. However, Dakota found a new passion amidst the anxiety: cooking! Watching cookery programmes led to cooking for herself and recently, three-course meals for paying uncles! Her wish to have cookery/baking equipment so she can cook independently and uninhibited by disability will be “life-changing."

£0

0% funded

£1350

Finley

11 years old

Cerebral palsy, Epilepsy

"I wish to have a gaming PC"

Finley was born six weeks premature in June 2009. Although his twin sister Ellie seemed poorly at first, it became clear that Finley wasn’t developing as well as her. An MRI scan showed that part of the left side of his brain was missing and doctors said that it was unlikely he would ever walk or talk. But therapy and exercises, like chasing his favourite Thomas the Tank engine around the room, developed the right side of his brain to compensate. He learnt to stand, to commando crawl at 18 months, then took his first steps. Finley's mum told us: "He can’t go and play football with his friends; gaming is his way. He’s got loads of gaming friends and has become one of the top gamers in his class. That’s given him such confidence. When he’s gaming, he has no disabilities. In fact, he’s more able than some other children online." Finley's wish is to have his own Gaming PC to play all his favourite games on.

£0

0% funded

£2400

Ollie

7 years old

Atrial septal defect

"I wish to have a laptop to help with schooling"

Ollie, seven, from Horsham is made of tough stuff. You could say he’s cut from the same cloth as the rest of his family, because the Butlers have had to be strong: Ollie’s dad has come through cancer and a liver transplant; his younger brother has already had eight heart surgeries, and Ollie has a duplex kidney, which has caused him many infections. He also has a hole in the heart that affects his stamina and ability to exercise. Despite these barriers, Ollie displays traits even grown adults would admire: after undergoing keyhole surgery to fix the hole, he’s now fighting fit and has chalked up another win for the Butler family. His wish to have a laptop to help with his education reflects this creative young boy's admirable personality. He’s previously entered a national writing competition and we think he’ll never be short of stories to tell: his alone is quite extraordinary.

£0

0% funded

£2250

Phoebe

16 years old

Leukaemia

"I wish to to go to Port Lympne"

Phoebe, 16, from Newbury, is an animal-lover who also enjoys snapping shots of nature using her photography skills. But she has always aspired to be a nurse and is already following this path at college. It's a profession that Phoebe learnt a lot about after being on the receiving end of hospital care when she became unwell and was diagnosed with leukaemia in 2018. Naturally, her initial reaction was fear as she didn’t know what to expect. Chemotherapy treatment caused hair loss, a rash on her face and mood swings while steroids meant she had severe leg pains. This put a strain on her family as they could no longer do as much together. But it was the support of family and friends that helped her through the toughest times. Her wish to go to Port Lympne animal reserve will provide quality family time and satisfy Phoebe’s fascination with wild animals.

£0

0% funded

£1750

Enrique

18 years old

Sickle cell disease with complications

"I wish to have a bedroom makeover"

Enrique, 18, from Kent, is at his best when in the company of friends and family. His favourite place to be is at home where he likes to chill out and play Xbox. This is largely due to the complications of living with sickle cell disease which affects the development of red blood cells; Enrique is at high risk of infection and cannot over-exert his body without risk of serious health implications. He doesn’t venture far for fear of illness and ruining plans; he would rather not make plans, leaving him feeling cut-off. Currently, Enrique is awaiting a bone marrow transplant from his brother to improve his health. Meanwhile, his wish to have a bedroom makeover will allow him to “see the loft as a room other than a prison cell,” and provide the comfort, freedom and ownership of personal space, after sharing a room for most of his life.

£0

0% funded

£2500

Wish granted Wish Granted

Stanley

4 years old

Cystic fibrosis

"I wish to live by the sea and see marine life"

Stanley, four, from Tunbridge Wells, “Is the biggest character you’ll ever meet: incredibly cheeky, very smart, with the biggest heart,” according to mum, Vikki. He’s also obsessed with the ocean! Unfortunately, one thing that came out of the blue at a few weeks old was the diagnosis of cystic fibrosis. This causes mucus to build-up in the lungs and digestive system; subsequently causing infections, problems digesting food and even a collapsed lung for Stanley. Having recently started school, Stanley has started saying he wishes he didn’t have cystic fibrosis - an impossible wish to grant. However, his wish to live by the sea and see marine life can certainly be granted! Stanley’s wish enables his parents to put a positive light on his unchangeable reality, whilst allowing Stanley to excitably “run up to strangers and tell them about his wish.” Mum added: “There couldn’t be any other wish for Stanley.”

£1000

100% funded

£1000

Ronald

16 years old

FIRES syndrome

"I wish to go for a short break in the countryside with my family"

Ronald, 16, from London, was an intelligent boy with bundles of energy who loved nature and the outdoors. His sister commented: “He had that presence; you knew when he was in the room.” He’s always been at his happiest outside and this has not changed since his tragic diagnosis of FIRES syndrome – a severe form of epilepsy that affects approximately one in a million children. Overnight, at six-years-old, Ronald had a seizure and went from being healthy to losing almost all physical functions. Doctors told the family numerous times that it was his last night, but after years of rehabilitation, he now communicates through facial expressions and body language. Ronald’s wish is to escape to the countryside with his family and enjoy the simple pleasures: the feeling of stillness in water; the sounds of nature; and the fresh air through his body. According to his sister: “When he’s outside, it’s a different story.”

£0

0% funded

£2500

Wish granted Wish Granted

Felicity

7 years old

Acute motor anoxal neuropathy

"I wish to go to Legoland"

Felicity, seven, from Newport, loves to play, whether it’s LEGO™, Minecraft™ with her big brother or tag with friends. She’s obsessed with Halloween and loves crafts. When she was two, she was totally paralysed after a virus attacked her nervous system and was diagnosed with acute motor axonal neuropathy. Five years on, only her arms are still paralysed. Felicity does six hours of physiotherapy daily and her hard work is making her stronger than ever. She can now stand unaided and uses a walker to get around. Incredibly, Felicity has learnt to use her feet as her hands: she can play, eat, write, paint and even drive her wheelchair with her feet (better than mum can drive her car apparently!). Her wish is to go to Legoland™ and she’s literally been counting down the days. She’s watched every video about the park, chosen her bed and the first ride of the day!

£1100

100% funded

£1100

Aaryan

12 years old

SYNGAP 1

"I wish to have a disability trike"

Aaryan, 12, from Middlesex, is a happy boy with an infectious smile. He’s a natural swimmer who loves the water, alongside lights and cycling. At three-years-old, Aaryan was diagnosed with epilepsy, which causes up to 100 absent-seizures a day. He also has severe developmental delay, which motivated his parents to seek help “shouting from the rooftops and banging on every door,” until he was diagnosed with SYNGAP 1 - a neurological disorder that causes physical and cognitive limitations. To avoid brain surgery, Aaryan follows the high fat keto diet which has dramatically reduced his seizures to two or three a day. He also needs speech and language therapy, physiotherapy and daily medication. His wish to have an adapted trike will allow Aaryan to do what he loves, with the people he loves. His condition stopped him enjoying his favourite thing; his wish will get him back in the saddle, build his skills and help him reclaim his independence.

£0

0% funded

£2400

Alex

16 years old

DiGeorge Syndrome, Tetralogy of Fallot

"I wish to go on a UK holiday"

Alex, 16 from Cheshire, loves animals. So much so, they’re the subject of the stories this wannabe author enjoys writing. One inspirational story is Alex’s own journey with poor health - described by his mum as “playing 52 card pick-up”. Before he was one-day-old, he was diagnosed with tetralogy of Fallot (four defects that affect the structure of the heart) and had three heart attacks. At one-week-old, Alex was diagnosed with DiGeorge’s syndrome – a condition that’s caused him to develop ADHD, autism and an involuntary movement disorder that doctors can’t diagnose, but left him wheelchair and housebound. “To have a change of scenery after being locked up,” is the basis of Alex’s wish to have a UK holiday. He loves warm water as it helps him relax both mentally and physically. Although he jokes that it will be raining when he eventually gets out, there’s no doubt this wish will brighten his day!

£0

0% funded

£2000

Louie

7 years old

Intestinal failure

"I wish to have a hot tub"

Louie, seven, from Dyfed, Wales, is an “animal-lover who is full of beans,” according to his mum. He is very sociable and loves nothing more than running around with his friends. Although, being energetic doesn’t come easily to Louie because of a multitude of health issues due to his stomach not working properly. His first four Christmases were spent in hospital and he had to be fed through a nasal tube and through IV. However, most methods of feeding caused a lot of sickness, so Louie now wears a rucksack for 22 hours-a-day so he can be slowly fed as much as possible straight into his digestive system. “It’s his superpower: his rucksack makes him superhuman.” And Louie has shown superhuman strength by overcoming life-threatening sepsis and learning to walk again. Louie and his family are currently moving to a house that better meets his needs so his wish to have a hot tub will provide quality time for all of them and the all-important chance to “splash his brother!"

£0

0% funded

£3000

Wish granted Wish Granted

Hope

6 years old

Cystic leukoencephalopathy

"I wish to go to Flamingo land resort"

Hope, six, from Sheffield, is into everything from bouncy castles, to building blocks, climbing, rolling about, books and prams. She will sit and flick through her favourite book with her dolls. Despite being six-years-old, Hope is at the developmental stage of 18 months: she can’t walk or talk. After missing milestones and suffering with up to 50 seizures a day, Hope was diagnosed with a cyst on her brain at the age of one. At five, she had two life-threatening seizures that were “absolutely terrifying,” causing Hope to collapse and go blue. Hope’s wish to go to Flamingo land resort will provide the whole family a chance to relive and build on memories from their visit in 2018. Single mum, Gemma, Mum said: “Hope had free reign; it was all accessible for her. She loved going on the family rides. We can be free of worry and live in the moment.”

£1100

100% funded

£1100

Harrison

6 years old

Quadriplegic cerebral palsy

"I wish to have a gaming PC"

Harrison, six, from Newcastle-under-Lyme, is full of life and love. He has a massive smile on his face from the moment he’s awake and is particularly happy with his favourite things: Marvel DC, his toys, and cuddles. His mum said: “He is happy to be awake in the morning.” Yet, his first awakening in the world wasn’t as happy: he was born unconscious after a brain haemorrhage in the womb. For five hours, mum Lydia didn’t know if he was alive. To this day, Harrison has not met many developmental milestones such as walking. He has very limited movement and needs intense physiotherapy for mobility. His family have self-funded much of his treatment, including operations, his wheelchair and physio. Harrison’s wish to have a gaming PC will open a world of possibilities to socialise online, learn new skills and help his education. It will remove barriers and replace them with opportunity and independence.

£0

0% funded

£1750

Wiktor

10 years old

Quadriplegic cerebral palsy

"I wish to go on a motorhome holiday in the UK"

Nine-year-old Wiktor is originally from Poland but now lives in Barnsley. He was born with quadriplegic cerebral palsy, so his speech and movement are limited but he's bilingual. He loves swimming, music and watching online videos about truck drivers. Wiktor and his younger brother Adrian, seven, are very close. If one of them gets upset, the other brother often cries too. Their mum Katarzyna told us: "Adrian helps Wiktor a lot. They love to play on the PlayStation together and, because of Wiktor’s illness, Adrian is his hands." Wiktor and his family try to live as normally as possible and the boys are full of joy - loving school and their friends. But it's difficult for them to get away as a family, so Wiktor's wish is to go on holiday in the UK in a spacious motorhome - taking everything they might need with them. There might even be room for one or two gaming devices...

£0

0% funded

£2250

Nathan

8 years old

Brain tumour

"I wish to have a bedroom makeover"

Nathan, eight, from Durham, is a quirky little boy who uses his dry sense of humour to crack lots of jokes. He is very into his gaming, as well as being a strong swimmer. Nathan’s health complications started in 2018 when diagnosed with diabetes insipidus. Later, an MRI scan showed a small mass on his pituitary gland – responsible for hormone production. Unfortunately, it was cancerous and Nathan had brain surgery at the age of six with intense radiotherapy and chemotherapy to follow. Now, he must have daily injections of hormones to help control growth, digestion, energy, mood, and most bodily functions. Nathan socialises a lot through gaming, so his wish to have a bedroom makeover will provide a comfortable space to enjoy with friends, as well as encouraging him to sleep independently in his own room; reducing his anxiety that stems from spending many nights in the confines of a hospital bed.

£0

0% funded

£2500

Simon-Pierre

7 years old

Epilepsy, Hemiplegia

"I wish to have a hot tub"

Six-year-old Simon-Pierre a.k.a ‘Junior’, from Tunbridge Wells, confesses: “I’m obsessed with washing machines.” Most mornings, he can be heard heading downstairs to put the washing machine on! He’s also loves planes and can feel them before seeing them – like vibrations from the washing machine. Junior was born with epilepsy and limited mobility caused by severe brain malformation at birth, resulting in three brain surgeries by eight-months-old to prevent seizures. Despite causing him to lose all the abilities he’d developed, Junior has recently taken his first unaided steps. Mum Amy said: “We are striving for the impossible; everything’s impossible before someone did it.” Junior’s wish to have a spa pool would give him his own giant ‘washing machine’; combining all his favourite things: vibration, bubbles and warm water. He can relax in the pool and watch planes and stars overhead, whilst the warm water enables greater freedom of movement.

£0

0% funded

£4500

John

9 years old

Renal failure

"I wish to have a petrol go-kart"

John, nine, from Carnforth in Lancashire, is a resourceful character who has built his own digger during lockdown. He had kidney disease but is recovering thanks to a kidney transplant donated by mum Marie six years ago. Now he has to ensure he stays hydrated and has check ups every 12 weeks. So there's nothing stopping him! He's recently taken up go karting and absolutely loves it. It has been a fantastic distraction from his illness. He loves all things American, fast cars, drums, and all sorts of music - especially Stormzy. His wish is all about "a need for speed!" - to have his very own petrol go kart!

£0

0% funded

£2500

Benjamin

6 years old

Leukaemia

"I wish to stay in a treehouse"

Benjamin, six, from Cirencester, is a “cheeky monkey with a heart of gold,” according to his mum. He loves playing with his family and dogs, but this is unsurprising as “he just loves everything”. Oh, except hospitals. Days after his first birthday and after persistence from a mother who’d seen enough of her child in pain, Benjamin was diagnosed with leukaemia. Being so young, he did not fully understand what was happening, but he knew that entering a certain room meant he was being put to sleep, causing him to "flip out". The tiredness from the chemotherapy frustrated him and despite learning to walk just before his treatment, he had to repeat this milestone. Now, he is striding towards his wish: to have a stay in a treehouse. The only other thing Benjamin doesn’t love is the two weeks of school that sit between him and his wish!

£300

25% funded

£1200

Wish granted Wish Granted

Emma

11 years old

Crohn's disease

"I wish to go to Alton Towers"

Emma, 14 from Birmingham, has a confident, have-a-go attitude. She loves to get stuck in: bouncing through gymnastics and trampolining and weaving through cross-stitch and embroidery. Emma has also had to tumble her way through her diagnosis of Crohn’s disease in 2017. After initially suffering with mouth ulcers, Crohn’s caused Emma to become fatigued, to faint, lose weight and become withdrawn as it attacked her gut. But Emma hasn't let the disease stop her achieving 100% attendance at school for three years and helping her mum to view life positively and take all opportunities - just like her wish. Emma’s original wish to go on a skiing trip had to be cancelled, but Emma put her heartbreak aside and gratefully changed her wish to go to Alton Towers with her family.

£1100

100% funded

£1100

Wish granted Wish Granted

Jessica

14 years old

Renal failure

"I wish to have a rose gold laptop for school"

Jessica, 14, from Norfolk, is on the waiting list for a kidney transplant as she's in renal failure. Her family is extremely close and anxiously awaiting news about a possible donor. Many fantasies were imagined whilst choosing her wish such as building a bear with her niece, so that they could swap bear hearts and have something of each other to cherish when Jessica is next in hospital. She also loves cooking and thought about meeting a celebrity chef. But, the wish she settled on was to have her own laptop so that she could be creative, stay in touch with her friends, can catch up on school work and gain new digital skills too! She has found the ideal fit: a rose gold laptop that will open up a world of possibilities and help Jessica maintain connections, explore new concepts and develop her skillset whilst enabling her creativity.

100% funded

 

Any funds donated to sponsor one of the listed wishes will, in the first instance, be used to grant that wish. If we are unable to grant one of the listed wishes, or in the case of any remaining funds, the money donated will be allocated to Make-A-Wish UK's general funds. Sponsorship of a wish does not entitle the sponsor to any external publicity rights.